Measuring long Covid’s deadliness

From: POLITICO Future Pulse - Friday Dec 16,2022 07:11 pm
The ideas and innovators shaping health care
Dec 16, 2022 View in browser
 
Future Pulse

By Ruth Reader, Ben Leonard and Grace Scullion

WEEKEND READ

Respiratory Therapist Nirali Patel works with a COVID-19 patient in the ICU.

A respiratory therapist works with a Covid patient in Chicago earlier this year. | Scott Olson/Getty Images

More than 3,500 American deaths have been attributed, at least in part, to long Covid, according to new data from the CDC, POLITICO’s Krista Mahr reported this week.

The agency’s findings “underscore the potential severity of a condition that continues to impact millions but is still poorly understood and — in some cases — dismissed entirely,” Krista wrote.

The CDC report is based on a review of death certificates from January 2020 to June 2022 that listed Covid-19 as a cause of death and cited such terms as “chronic Covid” or “long haul Covid.”

The report also found that the vast majority — or 78.5 percent — of the deaths attributed to long Covid were among white people. Black people accounted for just over 10 percent of long Covid deaths and Hispanic people accounted for 7.8 percent, despite both groups having higher rates of Covid-19 infection and death than the white population over the pandemic’s course.

Doctors treating people with long Covid told Krista the data doesn’t mean white people are more prone to long Covid, but instead, the rates suggest “it remains prohibitively difficult for patients to get treatment for the condition” because of “low levels of awareness among doctors and patients, lack of funding for specialized clinics and the time-consuming process of getting diagnosed and treated for a condition that has dozens of symptoms.”

The doctors said white people are disproportionately able to navigate that thicket.

But the condition remains underdiagnosed, according to Alba Azola, co-director of the Johns Hopkins Post-Acute Covid-19 Team, who said many of her patients were first told by other doctors that “they are just anxious.”

ANOTHER LOSS FOR PHRMA: Drugmaker AbbVie is withdrawing from PhRMA, the leading industry group, as well as the Biotechnology Innovation Organization and the Business Roundtable, POLITICO’s Megan R. Wilson reported.

The decision comes as regulators begin to implement the drug-pricing provisions of the Inflation Reduction Act that drugmakers spent millions lobbying to defeat.

With the passage of the bill, which allows Medicare to negotiate certain drug prices, the industry and its advocacy groups were handed the most significant legislative loss in decades.

AbbVie declined to say why it’s leaving the groups.

SPOOKS’ COVID MISS: Democrats on the House Intelligence Committee reported Thursday that U.S. intelligence operatives added little to the early pandemic response, “analyzing data about the virus that was already being discussed openly by public health officials,” POLITICO’s Erin Banco reported.

U.S. agents “took too long to pivot their exquisite collection capabilities to meet senior officials’ needs to know more about the crisis,” the report said.

Republicans on the House Intelligence Committee released a different report Thursday, focusing on how the intelligence community handled the question of Covid’s origins. It accused the intelligence community of failing to adequately address whether there’s a link between Covid-19 and China’s biological weapons efforts.

 

LISTEN TO POLITICO'S ENERGY PODCAST: Check out our daily five-minute brief on the latest energy and environmental politics and policy news. Don't miss out on the must-know stories, candid insights, and analysis from POLITICO's energy team. Listen today.

 
 
WELCOME TO FUTURE PULSE

Martin’s Beach, California

Grace Scullion

This is where we explore the ideas and innovators shaping health care. 

Anti-vaccine sentiment is increasing among parents. The number of Americans who think they should have the choice whether or not to give their children routine vaccinations has grown to nearly three in ten, according to a new KFF survey. Ruth wants to know what you think is driving that shift?

Share news, tips and feedback with Ben Leonard at bleonard@politico.com, Ruth Reader at rreader@politico.com, Carmen Paun at cpaun@politico.com or Grace Scullion at gscullion@politico.com. 

Send tips securely through SecureDrop, Signal, Telegram or WhatsApp.

Today on our Pulse Check podcast, Katherine Ellen Foley talks with Grace about the challenges the FDA faces as it tries to regulate the evolving tobacco industry.

Play audio

Listen to today’s Pulse Check podcast

YOUR SAY

AUCKLAND, NEW ZEALAND - FEBRUARY 24: Te Whanau o Waipareira essential heath workers hand out Rapid Antigen Tests to the waiting queue of cars in Henderson on February 24, 2022 in Auckland, New Zealand. Rapid antigen tests (RAT) are being given to people who present at community COVID-19 testing centres in Auckland from today, as demand for COVID-19 testing has increased due to the Omicron outbreak. People will still be able to get PCR tests at Auckland centres but will be able to test themselves at home with a RAT to get an indication of whether or not they have COVID-19. A positive RAT result does now not require any further testing. (Photo by Fiona Goodall/Getty Images)

Tests for other ailments aren't as readily available as ones for Covid. | Getty Images

At-home testing became a Covid-19 precaution during the pandemic, letting sick people know when to isolate themselves from others. In response to Americans becoming accustomed to self-testing, health care businesses began working to develop at-home tests for other highly contagious diseases like the flu and respiratory syncytial virus.

But tests for those ailments aren’t here yet, so Ruth asked you, Future Pulse readers, what you thought stood in the way of making them affordable and available:

And you had answers:

— Roger Seheult, medical adviser to at-home test kit maker On/Go, said test accuracy is an issue.

“There have been concerns about the accuracy of self-testing for flu and RSV, as false negative rates are higher. … That said, key advancements stemming from the Covid-19 pandemic point to a future where at-home testing for flu and RSV could soon become a reality.”

– Dave Hickey, executive vice president of diagnostic company Becton, Dickinson and Company, said the FDA has set a higher standard for correctly identifying flu than it did for Covid-19.

“We’ve had very good conversations with the [FDA] about what that would take. And we are using the respiratory season right now, which has started about six to seven weeks earlier than normal for flu, to collect those samples.”

Becton Dickinson hopes to have a product to market next year.

— Tom Stubbs, co-founder and CEO of diagnostic software platform Hurdle, said insurers could spur more use by paying for the tests.

“The health care industry’s reactive approach to care is one major barrier to accessible at-home diagnostic testing. Because “medical necessity” is often viewed as a critical factor in reimbursements in the U.S., patients frequently have to pay for preventative care out of pocket."

Stubbs added: "If insurance companies were incentivized by policy or legislation to cover diagnostic tests, people may be more inclined to proactively manage their health and seek out at-home treatments.”

See an issue in our newsletter that you want to comment on? Send us your thoughts!

 

A NEW POLITICO PODCAST: POLITICO Tech is an authoritative insider briefing on the politics and policy of technology. From crypto and the metaverse to cybersecurity and AI, we explore the who, what and how of policy shaping future industries. We’re kicking off with a series exploring darknet marketplaces, the virtual platforms that enable actors from all corners of the online world to traffic illicit goods. As malware and cybercrime attacks become increasingly frequent, regulators and law enforcement agencies work different angles to shut these platforms down, but new, often more unassailable marketplaces pop up. SUBSCRIBE AND START LISTENING TODAY.

 
 
EDITOR'S NOTE

The Dec. 2 edition of Future Pulse has been updated to remove information from another publication that has since been changed.

 

Follow us on Twitter

Ben Leonard @_BenLeonard_

Ruth Reader @RuthReader

Carmen Paun @carmenpaun

 

Follow us

Follow us on Facebook Follow us on Twitter Follow us on Instagram Listen on Apple Podcast
 

To change your alert settings, please log in at https://www.politico.com/_login?base=https%3A%2F%2Fwww.politico.com/settings

This email was sent to by: POLITICO, LLC 1000 Wilson Blvd. Arlington, VA, 22209, USA

Please click here and follow the steps to .

More emails from POLITICO Future Pulse

Dec 15,2022 07:02 pm - Thursday

Recession fears grip health executives

Dec 14,2022 07:02 pm - Wednesday

Gavi’s Covid jab guessing game

Dec 13,2022 07:01 pm - Tuesday

Hands off our data, Americans say

Dec 12,2022 07:01 pm - Monday

The downside of science grants

Dec 09,2022 07:02 pm - Friday

'Our diets are killing us'

Dec 08,2022 07:02 pm - Thursday

Walensky: States need to share better

Dec 06,2022 07:01 pm - Tuesday

The Future of Health Summit is underway