Kara Goucher Explains the Diagnosis That Changed Her Life—And Her Hope for the Future

From: Runner's World - Sunday Mar 20,2022 04:02 pm
Several years before she was diagnosed with runner’s dystonia—a rare neurological condition that creates a feeling of disconnection in one leg—Kara Goucher tried to do a little research about it.

A runner named Justine Galloway had attended one of Goucher’s retreats in 2018. Galloway has runner’s dystonia and runs backward, a creative solution to trick her brain.

“I was like, wait, what?” Goucher told Runner’s World by Zoom this week. “I remember being so impressed, because we ran down the creek path to the [University of Colorado] track, ran a workout, and ran back, and she did the whole thing backward.”

Afterward, Goucher Googled the disease, but couldn’t quite remember the name—runner’s dysmorphia? She hit a dead end, and didn’t think much of it again.

Until last November, when she sat in the office of a neurologist who was certain runner’s dystonia was the cause of her mystifying symptoms. That night, unable to sleep, she searched again.

This time, she turned up research papers and a 2018 Runner’s World article that compiled the stories of runners like Galloway with expert comment on a condition that’s likely much more common than documented.
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